23 May, 2014

Cystic Fibrosis Awareness - Adding Tomorrows

Today I have an personal card, as well as a pretty important one. May is Cystic Fibrosis Awareness month. CF is a rare genetic, fatal illness that affects 1 in 3,700 people (US numbers) which comes out to approximately 30,000 people in the US. It's a painful, costly, and deadly disease currently without a cure.

It's also the disease that I was born with. I've been *extremely* lucky in my manifestation of the disease. I have the most common mutation of the gene that causes CF, and yet my case has been relatively mild compared to my peers. While I've had terrible issues all my life, I haven't been hospitalized yet, nor have I needed a transplant or surgery to correct CF related issues. Of course, now that I've written this I'm afraid I'm ruining my luck...

Since CF is so rare, it's hard to get funding for our foundation and it's hard to make sure that we're provided with the constant medical care that we need to stay as healthy as we can. Awareness is the key to getting us the help we need. I thought one of the ways I could spread that with this website is to make this card. I bought Awareness Anya a year ago and waited all this time to use her for CF's cause. I focused on lots of purple (not hard, since it's my favourite colour) since our ribbon is purple. Making this card was a lot of pressure, I vacillated between several paper choices, as well as the PL kit club card that I used for the base and the printed sentiments. It's tough when things matter to you, you know?

If you'd like to know more about the disease or about how you can help, please visit www.cff.org.

Rubber Stamp: The Greeting Farm (Awareness Anya)
Cardstock: XPress-It, Bazzil
Paper: Doodlebug Kraft in Colour
Gossamer Blue Life Pages card
Doodlebug washi
Prima flowers
Studio Calico wood veneer
gems
Copics Used

Skin: E11/93/50/51/00/04
Hair: E49/77/23/31
Outfit: V17/15/12, BV04/02/01

16 comments:

  1. Agreed, it is especially hard when things matter to you. You did a lovely job!

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  2. It's a great card for a great cause. I should think it was quite hard to get right x

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    1. Thank you, Faye. Yeah, it was tough to sort it out with all the elements.

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  3. Adding tomorrows every day, is a very inspiring saying considering the the severity of the illness you live with. I admire your strength - and of course your creativity.
    Love the card.

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    1. It's the official slogan of the Cystic Fibrosis Foundation, I figured that was fitting. Thank you, and I'm glad you like the card.

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  4. I will pin it. I wish you the best. :)

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  5. Two of my BFF from high school grandchildren suffer from this disease. Her family participates in an annual walk as a fundraiser, I was able to help out with a small donation this year. I am going to check if Awareness Anya is still available, I would love to make cards for her for next year that she could use either to solicit donations or as thank yous for donations she receives. Thank you Aeryn for the inspiration, and good luck with your own struggle against this disease. I think your very positive attitude has help to keep your symptoms and the severity of the disease at bay.

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    1. Thank you for donating, and thank you for continuing to raise awareness. Every little bit helps, and I really appreciate it. I do try to keep positive, as you said, thank you for your well wishes. :)

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  6. Very pretty, Aeryn. Pinned and Liked :)

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  7. Such a beautiful and important card! The text is so meaningfull too.
    Best wishes to all sick/suffering people out there, keep positive and help each other!
    Hugs Blankina

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    1. Yes, that is the slogan of the Cystic Fibrosis Foundation which helps coordinate all the research, funding, and awareness for the disease as well as gets our medicine to us. It's a pretty important place, so I figured their slogan would be good on a card. I'm glad you like it!

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  8. It's a beautiful card! Thanks for the information. Living with a chronic condition takes tremendous courage. I hope your disease does not progress. I will pin your card. I was aware. I had a client a few years ago whose son had a successful double lung transplant which sounds like the most frightening thing in the world to me!

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    1. Thank you very much, Lisa! While it's a given that my disease will progress, since it's degenerative, I do what I can to stay healthy and active. I, too, am very afraid of any kind of surgery so fingers crossed!

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